Join us for the
10th Annual Rare Disease Symposium

Friday, March 10, 2023
8:30 am – 3:30 pm

This year, we are offering two attendance options:


Next Generation Technology
Praduman Jain, Chief Executive Officer
Vibrent Health

Rya Taft, Ph.D., Vice President of Scientific Research
Illuminia Inc.

Long read genome sequencing for the diagnosis of neuro-developmental disorders
Gregory Cooper, Ph.D., Faculty Investigator
HudsonAlpha Institute for Biotechnology

KEYNOTE– Beyond Engagement: Patient Communities as Critical Drivers of Rare Disease Research
Tania Simoncelli, M.S., Vice President, Science in Society
Chan Zuckerberg Initiative

The NORD Rare Disease Centers of Excellence Program: Collaborating to Address Unmet Needs
Edward Neilman, M.D., Ph.D., Chief Medical and Scientific Officer
National Organization for Rare Disorders

Building a Community Engagement Model for Rare Disease: A Community Ambassador Approach
Teneasha Washington, Ph.D., MPH, MBA, Assistant Professor
UAB School of Public Health, Dep’t of Health Behavior