Join us for the
11th Annual Rare Disease Symposium

Thursday, February 29, 2024 – Friday, March 1st


Next Generation Technology
Praduman Jain, Chief Executive Officer
Vibrent Health

Rya Taft, Ph.D., Vice President of Scientific Research
Illuminia Inc.

Long read genome sequencing for the diagnosis of neuro-developmental disorders
Gregory Cooper, Ph.D., Faculty Investigator
HudsonAlpha Institute for Biotechnology

KEYNOTE– Beyond Engagement: Patient Communities as Critical Drivers of Rare Disease Research
Tania Simoncelli, M.S., Vice President, Science in Society
Chan Zuckerberg Initiative

The NORD Rare Disease Centers of Excellence Program: Collaborating to Address Unmet Needs
Edward Neilman, M.D., Ph.D., Chief Medical and Scientific Officer
National Organization for Rare Disorders

Building a Community Engagement Model for Rare Disease: A Community Ambassador Approach
Teneasha Washington, Ph.D., MPH, MBA, Assistant Professor
UAB School of Public Health, Dep’t of Health Behavior