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SUPPORTING PEOPLE WITH RARE DISEASES
AND THEIR FAMILIES

Living with a rare disease is a unique experience that, for many, can often feel like traveling an uncharted path with unexpected twists and turns. You or a loved one may have lived with a rare disease for years. Or, you may be newly diagnosed or currently seeking a diagnosis. The good news is that hundreds of resources are available – both nationally and within Alabama – to help you find information, support, and understanding for the journey ahead.

What is a
Rare Disease?

Achieving a
Diagnosis

About
the Council

Rare Disease Fast Facts: