SUPPORTING PEOPLE WITH RARE DISEASES
AND THEIR FAMILIES
Living with a rare disease is a unique experience that, for many, can often feel like traveling an uncharted path with unexpected twists and turns. You or a loved one may have lived with a rare disease for years. Or, you may be newly diagnosed or currently seeking a diagnosis. The good news is that hundreds of resources are available – both nationally and within Alabama – to help you find information, support, and understanding for the journey ahead.