Alabama Rare Disease Advisory Council

RESOURCES

The AL Rare Disease Advisory Council developed the Rare Disease Resource Guide to provide helpful information and resources to assist and support people with rare diseases and their families. We hope that it will help you learn more about your rare disease and connect with a supportive rare disease patient community.

With information, support, and experienced medical providers, you will have the most valuable tools for navigating your journey successfully.

DOWNLOAD THE RARE DISEASE RESOURCE GUIDE

All information found in the Rare Disease Resource Guide is also available on this website. View links below:

how to talk about your rare disease — Talking to Others about your Disease

achieving a diagnosis — Achieving a Diagnosis

managing the financial costs of a rare disease — Managing your Financial Costs

finding information about your disease — Finding Information about your Disease

clinical trials and clinical research — Clinical Trials & Research

relating to your healthcare professional — Relating to your Healthcare Professional