The AL Rare Disease Advisory Council developed the Rare Disease Resource Guide to provide helpful information and resources to assist and support people with rare diseases and their families. We hope that it will help you learn more about your rare disease and connect with a supportive rare disease patient community.

With information, support, and experienced medical providers, you will have the most valuable tools for navigating your journey successfully.

All information found in the Rare Disease Resource Guide is also available on this website. View links below: